Last week Lizzie had a study performed on her called a pH probe. They put a plastic coated wire down her nose, through her esophagus, and into the top of her stomach. The opposite end was attached to a metal box thing as you can see in the picture. We had to leave it in for 24 hours while we went through her normal daily routine. The wire and box recorded the pH levels in her esophagus to help determine if it is GERD (gastroesophogeal reflux disorder) causing her to vomit.
I went this morning to get the test results. The doctor told me that the pH levels remained well within normal range. This means that she does not have GERD and the Nissen surgery that I described earlier will not help her. It will keep food from coming all the way up, but she will still wrench and dry heave. He told me that she would be even more miserable than she is already. He also said that it is a brain issue. Something in her brain randomly triggers causing her to vomit, or so was his best guess.
I asked the doctor what to do next. He said that he would let her other doctors and specialists know, and someone should give me a call back in a few days. This did not settle well with me. I cried for about half an hour. My always optimistic husband was a big comfort to me.
Our next plan of action to talk to her neurologist about this issue. I’ve never mentioned it to him in the past because I thought it was a digestive issue not a neurological one. We already had a follow up appointment with him scheduled within the next two weeks to make sure her anti-seizure medication is still at the correct level. I will discuss it with him then.
Please continue to pray for healing. I have these awful images in my mind of trying to send Lizzie off to school one day with a vomit bucket. I just don’t think that would work. Or trying to go to a restaurant one day with her and having her vomiting set off a chain reaction among all the costumers and wait staff. (Okay, that one actually makes me chuckle a little. I have to find some humor in this or else I’ll loose my mind.)
Please pray for peace in our hearts as we trust the Lord in this situation. He has taken care of so much for us already, and I know he can handle this one too.
Please pray for wisdom as we continue on seeking solutions.
3 comments:
You are a strong woman! Hang in there...we know who is in control. We'll be praying for Lizzie!
Oh Jamie I am so sorry. And here I was texting you talking about babysitters and just going on and on...I am sorry for not picking up on the fact that you needed to vent :) Let us know what you guys need. Take care friend.
This is the cutest pic of Lizzie! I love it!! She is sooo happy!
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